Sunday, September 20, 2009
I havent blogged in a while. Life has been so busy. We got a new puppy, made trips to STL, Madeline got glasses, she started Pre K, I started peritoneal dialysis, Madeline started tap/jazz class, I cant drive because of three grand mal (tonic clonic) seizures, joined our church St. Paul Methodist,became addicted to Rockband, learning to play a dulcimer, working 4 hours a week, kickball is starting, trying to become an advocate for kidney patients, staying healthy and trying to get a kidney transplant. And trying to be a good wife, mother, daughter, sister, friend, niece, cousin, occupational therapist and patient. I got some discouraging news this week. Barnes will not be able to give me a kidney transplant. I am too risky and have an 80-100% chance the HUS will come back of they operate. Which would immediately kill a new kidney. They have refereed me to the Mayo clinic. The Mayo clinic has a study going on with the drug solaris that has been successful in other HUS cases. I believe God took me out of fabulous hands (Barnes) and is placing me in an even better place (Mayo). They are my last chance for a transplant unless medicine makes some breakthroughs. I believe God can do anything though. He could lay his hands on me this very moments and make my kidneys flow. So, I am not giving up. And the few times I want to, Chris is pushing me on to keep fighting. SO I will. And someday this will all make perfect sense.